Chronic Illness/Autoimmune

Prednisone, Roid Rage, and Moon Face

I had started drafting this post about a month back, and Dynamo (Steven Frayne) coming forward to speak of his Crohn’s disease seemed like a great reason to finish and post it.  Here’s the link to a wonderful The Mighty article that includes Dynamo’s video and more information on the “MoonfaceForDynamo” movement (link). I was… Continue reading Prednisone, Roid Rage, and Moon Face

Chronic Illness/Autoimmune, Medical Benefits

My Home Infusion Experience

I have tried my fair share of medication to find the right one(s) – including Humira, Remicade, and Entyvio.  Humira provided some relief, until my 4-month bout of c. diff – afterwards increasing to weekly injections without a difference.  During my last “loading” dose of Remicade, I began having drug-induced Lupus symptoms.  Though I’m not… Continue reading My Home Infusion Experience

Chronic Illness/Autoimmune, Non Profit

Fund A Life

Today, I want to talk about a non-profit that, though I only recently became aware of, I am deeply passionate about them and their cause.  I first learned of it through a coworker who is the sister-in-law of the founder, Mark Howell.  In October 2012, he was diagnosed with Stage 4 Metastatic Melanoma.  Mark’s community… Continue reading Fund A Life