Chronic Illness/Autoimmune, fmla, short-term disability

FMLA – Week One

Week one of my medical leave has been going well.  Though I still feel weak, fatigued, and pained, I can feel myself and my body moving in the right direction.  I tried not to put too much on my plate, focusing mostly on self-care, getting my FMLA and Short-Term Disability paperwork filed, and making appointments.… Continue reading FMLA – Week One

Chronic Illness/Autoimmune, Non Profit, non-profit

March Awareness Month

March is the month of awareness for endometriosis, autoimmune diseases, and colorectal cancer.  I’ve written and rewritten this post in the notes on my phone a few times.  All three of these things are very important to me, so I wanted to make sure I got it right.  I am affected by two of them,… Continue reading March Awareness Month

Chronic Illness/Autoimmune

Prednisone, Roid Rage, and Moon Face

I had started drafting this post about a month back, and Dynamo (Steven Frayne) coming forward to speak of his Crohn’s disease seemed like a great reason to finish and post it.  Here’s the link to a wonderful The Mighty article that includes Dynamo’s video and more information on the “MoonfaceForDynamo” movement (link). I was… Continue reading Prednisone, Roid Rage, and Moon Face

Chronic Illness/Autoimmune, Infusions

The Adventure of My Port & Me

February is my Portiversary month!  I have a single lumen power port that was placed two years ago. Once upon a time, I had good veins that nurses were able to access.  After the many IVs started during my hospitalizations over the four months I had c diff and received multiple potassium infusions (which hurt… Continue reading The Adventure of My Port & Me

Chronic Illness/Autoimmune, Travel

Theme Parks: Spoonie Style

Though it can be rough to travel and enjoy vacations with a chronic illness(es), many theme parks across North America, Europe, and Asia make an effort to help make the trip a bit easier and more enjoyable.  Many parks have accessibility programs for guests with disabilities and/or chronic conditions.  In this post, I am going… Continue reading Theme Parks: Spoonie Style