For the past month of my FMLA leave, I have been trying to balance living in the moment and doing things with friends and family while also taking care of my health. I’ve begun taking longer walks than I had previously over the past month and even tried some yoga for arthritis. Though it felt… Continue reading FMLA Update – Week Two – Five
I realized today is exactly one month since the last blog post that I’ve written. Everything since has been written by my wonderful, caring husband (for Alex’s Caregiver Corner) who has been helping not only with covering blog posts, but also by being my rock during this hard time. My health has continued to worsen… Continue reading A Big Announcement
Over the past few posts, I have discussed caring for a spoonie, the stress of social situations, and helping a spoonie. After all this, I think it is important to explain what a spoonie is to those who may not know. Some people might know what a spoonie is already, but for those who do… Continue reading What Is a Spoonie?
Some of you may already know, but Lauren has not been feeling well. Between her lack of energy and the new added responsibilities at work, her spoons have been at an all-time low. In an effort to help her, I figured I would make Caregiver Corner a little more regular. In addition to writing more,… Continue reading Helping Your Spoonie
Hello everyone, Alex here again. Lauren had her infusion today, so I decided to do another edition of Alex's Caregiver Corner. Today, I want to talk about family and friends, those wonderful crazy people that helped raise you and made you the great person you are. Family and friends can be great, but when you… Continue reading De-stressing Family Situations
One of the first things my now-husband and I did once engaged (after telling our families) was pick a date. Since I’m on Entyvio, which typically has an eight-week infusion cycle, and we knew we wanted a fall wedding, we picked a few dates that would be in the middle of my infusion schedule. We… Continue reading Wedding Planning with Chronic Illness