Chronic Illness/Autoimmune, fmla, short-term disability

FMLA – Week One

Week one of my medical leave has been going well.  Though I still feel weak, fatigued, and pained, I can feel myself and my body moving in the right direction.  I tried not to put too much on my plate, focusing mostly on self-care, getting my FMLA and Short-Term Disability paperwork filed, and making appointments.… Continue reading FMLA – Week One

Chronic Illness/Autoimmune, non-profit

A Big Announcement

I realized today is exactly one month since the last blog post that I’ve written.  Everything since has been written by my wonderful, caring husband (for Alex’s Caregiver Corner) who has been helping not only with covering blog posts, but also by being my rock during this hard time.  My health has continued to worsen… Continue reading A Big Announcement

Alex's Caregiver Corner, Chronic Illness/Autoimmune

What Is a Spoonie?

Over the past few posts, I have discussed caring for a spoonie, the stress of social situations, and helping a spoonie. After all this, I think it is important to explain what a spoonie is to those who may not know. Some people might know what a spoonie is already, but for those who do… Continue reading What Is a Spoonie?

Alex's Caregiver Corner, Chronic Illness/Autoimmune

Helping Your Spoonie

Some of you may already know, but Lauren has not been feeling well.  Between her lack of energy and the new added responsibilities at work, her spoons have been at an all-time low.  In an effort to help her, I figured I would make Caregiver Corner a little more regular.  In addition to writing more,… Continue reading Helping Your Spoonie

Chronic Illness/Autoimmune

Brainfog & Painsomnia

Hopefully I can get through this post without losing my train of thought… Brainfog is sometimes my most frustrating symptom.  Consistently loosing words, names, or what I was going to say is worrisome to me – as someone who has been known to be good at remembering details.  It’s something I’m often concerned is going… Continue reading Brainfog & Painsomnia

Alex's Caregiver Corner, Chronic Illness/Autoimmune

Caring for a Spoonie

As many of you know, Lauren normally writes a post every Tuesday, however this week has been rough.  Because of this, I offered to help and write something for her – creating Alex’s Caregiver Corner, where I will be contributing semi-regular posts. Today’s post is about caring for a spoonie and the adventures (or misadventures) that… Continue reading Caring for a Spoonie

Chronic Illness/Autoimmune

Hospital Essentials

As I’m sure many of you understand, I never want to be in the hospital.  I never get much rest, am at higher risk of infection (especially if I don’t have a private room), and would much prefer to be home with my husband and pups.  Because of this, when I am in the hospital,… Continue reading Hospital Essentials

Chronic Illness/Autoimmune, Infusions

Keeping Cozy

Today’s post is a bit shorter than most, as I haven’t been feeling well.  With pain top of mind today, I wanted to touch on what clothes I find the most comfortable on bad pain days. When I’m in a lot of pain, the texture of clothing is a big thing that helps me.  Though… Continue reading Keeping Cozy

Chronic Illness/Autoimmune, Infusions, Travel

Wedding Planning with Chronic Illness

One of the first things my now-husband and I did once engaged (after telling our families) was pick a date.  Since I’m on Entyvio, which typically has an eight-week infusion cycle, and we knew we wanted a fall wedding, we picked a few dates that would be in the middle of my infusion schedule.  We… Continue reading Wedding Planning with Chronic Illness

Chronic Illness/Autoimmune, non-profit

The Great Bowel Movement

There is another non-profit I wanted to highlight that is very close to my heart – The Great Bowel Movement.  It is an IBD and ostomy focused non-profit focused on empowering patients to start conversations and educate others. The Great Bowel Movement was founded by Megan Starshak & Andrea Meyer in 2010.  Both women have… Continue reading The Great Bowel Movement