I realized today is exactly one month since the last blog post that I’ve written. Everything since has been written by my wonderful, caring husband (for Alex’s Caregiver Corner) who has been helping not only with covering blog posts, but also by being my rock during this hard time. My health has continued to worsen since I was in the hospital, and I’ve been trying to balance work, family, friends, health, self-care, and The Misadventures of a Spoonie without much success. This past month has been mostly filled with work, some family time, and interrupted sleep/painsomnia with some eating sprinkled in when food actually sounds good. (Typically, banana bread with chocolate chips, in case you were wondering! 😉) Thankfully, I love what I do and the people that I work with, which made the past month much more enjoyable, even though my health wasn’t great.
Since before I went into the hospital, my husband and I have been discussing the possibility of me using FMLA and Short-Term Disability. Because I enjoy my job and have workaholic tendencies, I have been putting off this decision, but have reached a point where I know my health will continue to decline if I don’t take this time to heal. I feel really lucky to have the support system I do in making this decision. Though it’s been difficult, having the support of Alex, other family members, close friends, my incredible supervisor/mentor, and the C-level team of the company I work for has made the decision easier. With each person I spoke to and felt supported by, a weight was lifted from my shoulders.
This will be a big shift for me, but I am looking forward to having this leave – which begins next week. My main focus during this time will be getting second opinions, trying to find additional answers, working with doctors to create a treatment plan that works better than my current one, and all the trial-and-error that comes along with it. As many of you know how exhausting “doctor shopping” can be—and any travel that comes along with it—I will also be trying to be better at practicing better self-care and listening to my body. Personally, writing content for The Misadventures of a Spoonie and The Great Bowel Movement is quite cathartic for me. Being able to express my thoughts, feelings, pain, and experiences through writing helps to keep stress levels down, and I love being able to help others in the process. Through this blog, I plan to document my experiences of being on FMLA, applying for (and hopefully getting) Short-Term Disability, doctor’s appointments, and any major changes in my diagnosis or care. Plus, I have a stack of mystery novels to read while resting with my pups.
Here’s to the next three months! I’ll be posting again soon. 😊